The GIANTS are excited to announce a new partnership with EB Research Partnership (EBRP), a charity dedicated to funding research to treat and cure the rare skin disease Epidermolysis Bullosa (EB).
Established in 2010, EBRP was founded by dedicated families along with Jill and Eddie Vedder of Pearl Jam, who share a common goal to find a cure for the life-threatening skin disease.
EB Research Partnership was formed in the United States and has since grown to a global organisation with a dedicated office in Australia.
Lethal for many of the children born with it, EB damages not just the skin we see but the connective tissues and organs inside the body. It results in wounds that never heal, disfigurement, blisters, bleeding, and ever-present pain.
EBRP is dedicated to finding treatments, and ultimately a cure, for this group of life-threatening diseases that affects children from birth. Through an innovative Venture Philanthropy model, EBRP raises funds to invest in cutting-edge science and medical research at top institutions around the world, including projects at University of South Australia.
The GIANTS are delighted to partner with EBRP, with the charity’s logo to be proudly displayed on the front of the GIANTS’ playing shorts from Saturday night.
“We are thrilled to partner with EBRP, they are a wonderful organisation dedicated to supporting people in need, and particularly children,” GIANTS CEO David Matthews said.
“The work they do to raise funds for such a meaningful cause it to be truly commended and we’re looking forward to helping raise awareness for the amazing work they do.
“We are hoping that together we can help make a difference and play our part in helping find treatments, and hopefully a cure, for this debilitating disease.
“Our players are proud they will run out onto a sold-out ENGIE Stadium on Saturday night to take on Collingwood in the inaugural Opening Round with EBRP on their shorts.”
EB Research Partnership CEO Michael Hund said he was grateful for the GIANTS joining the worldwide team supporting EBRP’s goal to cure EB by 2030 and create a model that can impact thousands of other rare diseases.
“Children battling EB inspire us to fight this disease with urgency and determination,” Mr Hund said.
“They show bravery, grit, and heroism each day. These are the same traits we see the GIANTS players and staff bring to each game.
“Our mission is to cure EB by 2030, and we are honored that the GIANTS will join this fight alongside us.”
